N: We began with PECS but we soon needed more range so we tried to move onto sign language and PODD. Q: Have they used any other form of AAC or did they go straight to the device they’re using now? near and dear to Archer’s heart – it’s all in there, photographed and labelled. His developmental school put a custom template on it, and then this mama worked her magic to design each page to include everything he could need! All of the objects, people, food, books, toys, DVD titles, places, music etc. We have multiple devices to ensure he always has his ‘talker’ with him wherever he might be. N: Archer currently uses Proloquo2Go on his iPads. N: When we realised Archer’s speech was non-existent, he would have been around 2-3 years of age. We started using AT as a family very early on and we haven’t looked back. He never had the pre-communication skills such as mouthing, rolling his tongue etc, plus he has hypotonia – speech just never came. Over many years of searching and researching, we now know Archer has Coffin-Siris Syndrome, and also presents with Partial Agenesis of the Corpus Callosum. He is active, vibrant, full of spunk and is completely non-verbal. Children with Angelman’s have significant communication difficulties. He attends a specialist school 3 days a week and a Jewish mainstream school 2 days a week. He is super determined, cheeky and brings so much happiness and love to all those around him. M: Our dear son is gorgeous Mendy, who is 8 years old and has Angelman syndrome. Can you tell us a little bit about your child and their diagnosis and why they use assistive communication? We spoke to two mums – our very own Naomi, mum to Archer, and Menucha, mum to Mendy about their child’s journey using AAC to communicate.
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